The BPSU is a world leading centre for rare paediatric disease surveillance. It enables doctors and researchers to investigate how many children in the UK and Republic of Ireland are affected by particular rare diseases, conditions or treatments each year.
Founded in 1986, by the RCPCH, Public Health England and the University College London Great Ormond Street Institute Of Child Health, the aim of the BPSU is to encourage the study of rare conditions in children. The work has facilitated research on over 120 rare conditions, and has immensely influenced decisions about these diseases, child and public health policy and measuring treatment impact on patients.
As part of the scheme, each month orange e-cards are sent to 4,000+ consultant paediatricians and specialists; the card lists the rare conditions currently being studied. If any doctor has seen a child affected by one of these conditions they report this to be BPSU, who then liaise with the doctor to seek more information.
The BPSU is part of a wider international network of paediatric surveillance units (INOPSU); covering 10,000 clinicians and 50 million children.
Child Protection Evidence is a RCPCH evidence-based resource available to clinicians across the UK and internationally to inform clinical practice, child protection procedures and professional and expert opinion in the legal system.
Formerly known as The Cardiff Child PrOtection Systematic REviews project (CORE INFO), the College has taken over the systematic reviews, rebranding these as Child Protection Evidence systematic reviews. Adopting CORE INFO is a good fit for the College, as evidence from the resource is used to inform the content of publications such as the Child Protection Companion (available under the CPC tab) and The Physical Signs of Child Sexual Abuse.
Co-developed by disabled young people, family carers and other experts, Disability Matters provides free high-quality e-learning to support those who work or volunteer with disabled children and young people between the ages of 0 and 25 years to help them to achieve what matters to them. It aims to improve confidence, promote effective communication and encourage collaborative working.
With 58 modules grouped under 6 clear sections and dedicated learning packages for paediatricians, nurses, NHS support staff and others, Disability Matters will help make your service more welcoming, accessible and inclusive.
The Epilepsy Passport is a paper record of relevant and up-to-date clinical information designed to be carried by children and young people or their parents and carers. It aims to help improve communication both between and within clinical teams that care for children and young people with epilepsy. Importantly, it also serves to improve clarity around ongoing management for children, young people and parents. It is available to download as a pdf from the RCPCH website and is expected to be completed at epilepsy clinic appointments by paediatricians and/or specialist epilepsy nurses. The Epilepsy Passport is then given to children and young people with epilepsy and their parents/carers who will present it to healthcare professionals as and when it is needed.
Growth is an important indicator of a child's health. The UK-WHO growth charts provide a description of optimal growth for healthy, breastfed children and allow health professionals to plot and measure a child's height and weight from birth to young adulthood.
Anyone who measures a child, plots or interprets charts should be suitably trained, or be supervised by someone qualified to do so.
Please note that the RCPCH does not provide copies of the UK-WHO growth charts, only the free low-resolution downloads available on this website.
The HeadSmart education module has been designed to help health professionals improve their knowledge of brain tumour presentation in children and young people and the links between brain structure and function. By the end of it you should know some of the common symptom and sign combinations that are caused by brain tumours in different locations, as well as understand the common ways in which brain tumours present and some of the diagnostic difficulties that occur in children with brain tumours.
The Healthy Child Programme 0-18 is a series of e-learning programmes developed for NHS healthcare professionals on child and adolescent health promotion. These e-learning programmes are free for NHS healthcare professionals and are delivered through the Health Education England e-learning platform e-Learning for Healthcare
There are three programmes in the HCP 0-18 series:
Medication errors are a significant but preventable cause of harm to children and young people. Meds IQ aims to bring together tools and improvement projects that have been developed to address this problem. It is envisaged that child health professionals will be able to use this resource to support their own improvement work and learn from the experiences of others. At the same time, Meds IQ is bringing together organisations across the UK and beyond to ensure that medication safety remains a priority for paediatric research and practice.
Meds IQ focuses on four key areas of medication safety:
- safe prescribing
- medication reconciliation
- error reporting
- engaging patients, parents and carers.
Aside from a resource library addressing these areas, the site also has links to resources for developing skills in quality improvement methodology and e-learning courses.
This eTool was developed by the Meningitis Research Foundation in collaboration with the British Paediatric Surveillance Unit, the Royal College of Paediatrics and Child Health, the study investigators at St George's and an expert at St Mary's. The eTool has been endorsed by the RCPCH.
It is designed to help clinicians improve their assessment and management of young infants who present with possible bacterial meningitis, and provides an opportunity to learn from the real cases in the research study, using anonymised case histories presented in interactive question-and-answer format. The clinical management sections are in alignment with relevant NICE guidelines and direct links to applicable guidance are provided throughout.
MindEd provides simple, clear guidance on children and young people's mental health, wellbeing and development to any adult working with children, young people and families, to help them support the development of young healthy minds.
It does this through bite-sized chunks of e-learning, that are free, completely open access, and available on tablets, phones or computers.
PMM is an evidence-based, free online resource focussed on common and also important musculoskeletal problems in children and young people. PMM was developed by a team in Newcastle upon Tyne, UK, led by experts in paediatric rheumatology in partnership with doctors from primary care, paediatrics, orthopaedics, nurse educators, social scientists and creative web designers.
PMM content has been developed through research with a wide range of health care user groups and can be accessed via smartphone, tablet and PC. The PMM content has been peer reviewed and endorsed by RCPCH, the British Society for Paediatric and Adolescent Rheumatology and NICE.
This Toolkit is designed to help GPs and Practice staff to recognise when a child may be at risk of maltreatment, to know what to do if there are concerns and how to work effectively with other disciplines and agencies. The core document emphasises aspects of child safeguarding and child protection most likely to be encountered in general practice in relation to patient care, patient safety, GP appraisal, revalidation and regulation. It brings together relevant guidance and information, focusing on good medical practice, early intervention and prevention, as well as signposting to existing safeguarding statutes, policies, tools and resources.
Established in 2015 as the UK Foundation for Kawasaki Disease - the leading cause of acquired heart disease in children - Societi (registered charity no.1173755) are a policy shaping and influencing organisation which work to raise awareness of Kawasaki Disease and provide information for clinicians and families.
The incidence of Kawasaki Disease is rising sharply in the UK, and the Foundation works through partnerships to drive transformational change in awareness across the UK. Research shows that early treatment improves outcomes for children, and as such the organisation are working to promote early diagnosis and prompt treatment.
Together for Short Lives publishes a range of specialist publications, toolkits and guidance for all professionals who care for babies, children and young people with palliative care needs. For example there is a series of frameworks and pathways to help professionals plan care for children and families throughout their journey. There are specialist tools, including a children's palliative care symptom and pain management guide. The publications have been developed for all professionals; you don't have to be a specialist in children's palliative care.
The Yellow Card Scheme is vital in helping the MHRA monitor the safety of all healthcare products in the UK to ensure they are acceptably safe for patients and users. In addition to collecting suspected adverse drug reactions the Scheme now supports the reporting of medical device incidents, counterfeits and defective healthcare products. For medicines, the Scheme acts as the early warning system to identify new and strengthen existing safety information. Reports can help MHRA to take action, if necessary, to make changes to the warnings given to people taking a medicine or review the way it is used to maximise benefit and minimise the risk to the patient.
You should report all suspected adverse drug reactions that are:
- serious, medically significant or result in harm. Serious events are fatal, life-threatening, a congenital abnormality, disabling or incapacitating, or resulting in hospitalization;
- associated with newer drugs and vaccines; the most up to date list of black triangle medicines is available at: www.mhra.gov.uk/blacktriangle
If in doubt whether to report a suspected adverse drug reaction, please complete a Yellow Card online or via the mobile App, available from Google play and iTunes.
Further info for healthcare professionals including CPD modules can be found on the MHRA website