Resources for Families

Medicines for Children

Medicines for Children leaflets provide parents and carers with practical, reliable information about medicines prescribed to children. The leaflets cover the most common medicines prescribed to children. They are written in plain English, and answer frequently asked questions or common concerns parents and carers have, including:

  • How do I give this medicine?
  • What if I forget to give it or give too much?
  • Are there any possible side-effects?

The project has been accredited by the Information Standard since 2011.

Medicines for Children is a partnership project between RCPCH, NPPG and the family charity WellChild.

Epilepsy Passport

The Epilepsy Passport is a paper record of relevant and up-to-date clinical information designed to be carried by children and young people or their parents and carers. It aims to help improve communication both between and within clinical teams that care for children and young people with epilepsy. Importantly, it also serves to improve clarity around ongoing management for children, young people and parents. It is available to download as a pdf from the RCPCH website and is expected to be completed at epilepsy clinic appointments by paediatricians and/or specialist epilepsy nurses. The Epilepsy Passport is then given to children and young people with epilepsy and their parents/carers who will present it to healthcare professionals as and when it is needed.


infoKID provides high quality information for parents and carers about kidney conditions in babies, children and young people, including symptoms, causes, diagnosis, treatment and management. Currently, there are 23 kidney conditions covered from AKI, CKD and glomerulonephritis to UTIs and vesicoureteral reflux and reflux nephropathy.

infoKID is a partnership between the Royal College of Paediatrics and Child Health, the British Association for Paediatric Nephrology and the British Kidney Patient Association, and is accredited by the Information Standard. All the information was written in in consultation with parents and carers, and in collaboration with healthcare professionals who support children with kidney conditions, including paediatric nephrologists, nurses, play specialists, surgeons and paediatric urologists.

Together for Short Lives

Together for Short Lives is the UK charity for all children and young people with life-threatening and life-limiting conditions and all who love and care for them. To support families on their journey the charity has developed a range of easy to read publications, guides and factsheets. There's a dedicated Family Companion, which provides a step by step guide through the complex and often confusing processes that take place following diagnosis, and a wealth of factsheets and supportive information. Families can also sign up for a regular newsletter, packed with useful information and resources.

Together for Short Lives' resources have been awarded the Information Standard kite mark, so you can be assured that they are up to date, reliable and easy to read.

The NHS website

As part of a programme of work by NHS Digital to improve its services, the NHS Choices website will now be referred to as the NHS website going forward.

The NHS website is the UK’s biggest health website. It provides a comprehensive health information service to help put patients in control of their healthcare.

The Health A-Z section explains more than 840 conditions and treatments in words, pictures and videos. Top doctors and health professionals share their knowledge and advice while patients give an insight into coping with conditions and the treatments they have had.

An automated translation system allows most content to be displayed in more than 50 languages.

NHS Choices is certified by the Information Standard as a producer of reliable health and social care information.

Parents and Youth Info Index – Royal College of Psychiatrists

Part of the Royal College of Psychiatrists' Heath Advice resource, the Parents and Youth Info Index provides readable, user-friendly and evidence-based information specifically tailored for young people, parents, teachers and carers about mental health.

These information leaflets can be accessed and printed online and paper copies are also available to order. The leaflets are regularly updated by psychiatric experts and are accredited by the Information Standard.

Societi, The UK Foundation for Kawasaki Disease

Established in 2015 as the UK Foundation for Kawasaki Disease - the leading cause of acquired heart disease in children - Societi (registered charity no.1173755) are a policy shaping and influencing organisation which work to raise awareness of Kawasaki Disease and provide information for clinicians and families.

The incidence of Kawasaki Disease is rising sharply in the UK, and the Foundation works through partnerships to drive transformational change in awareness across the UK. Research shows that early treatment improves outcomes for children, and as such the organisation are working to promote early diagnosis and prompt treatment.

Stroke Association

The childhood stroke toolkit, developed by the Stroke Association, provides information for education and childcare professionals working with children who have had strokes. It explains the effects of stroke, how to spot the signs of childhood stroke and what to do, as well as plans to support learning in an easy to access downloadable toolkit.

The toolkit covers children in pre-school, primary and secondary schools, college and further education settings, and was developed with teachers, parents, children and professionals. It provides key information about stroke in childhood, as well as practical tools to help with communication, planning and documentation in the classroom or childcare setting. Where possible, the Stroke Association have signposted to where you can find additional sources of information and support for professionals and families.

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